A landmark study published in the New England Journal of Medicine has revealed promising results…
Childrens Tumor FoundationJune 21, 2024
NF affects 1 in every 2,000 births
NF refers to genetic conditions that cause tumors to grow on nerves throughout the body. NF includes all forms of neurofibromatosis and schwannomatosis and affects about 4 million people worldwide. Anyone can be born with NF, and it affects everyone differently. There is no cure yet.
1
FDA-approved Drug for NF, and more on the horizon
Koselugo (selumetinib) is the first FDA-approved drug for NF. CTF-funded research paved the way to this drug approval, and we are working for more approved drugs for all types of NF!
3X
the number of NF Clinical Trials in the past 10 years
There are currently 67 active clinical trials for NF – three times the number of trials than just ten years ago!
45
years of funding NF research
The Children’s Tumor Foundation was founded 45 years ago as the first grassroots organization to support patients with all types of NF.
11,000
have joined the NF Registry
The NF Registry is a secure website where people with NF can take an active role in the search for better treatments. Participating is easy and makes a difference!
20,000
patients each year visit the NF Clinic Network
The NF Clinic Network (NFCN) is the first nationwide network dedicated to improving clinical care and establishing best practices for treating individuals with NF.
CTF Knowledge Base
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Latest News
Give for Hope: Rozalinda’s Challenges with NF2-SWN and Her Hope for Brigatinib
Rozalinda was just 21 years old when she received life-altering news that would reshape her…
FDA Grants Fast Track Designation to Healx NF1 Treatment
The Children’s Tumor Foundation’s support of the NF1 programs at Healx is accelerating progress! We…
Give for Hope: Rozalinda’s Challenges with NF2-SWN and Her Hope for Brigatinib
Rozalinda was just 21 years old when she received life-altering news that would reshape her…
Young Investigator: Q&A with Isam Naber about identifying biomarkers for NF2-SWN hearing loss
The Young Investigator Award (YIA) provides two-year salary support to early-career NF researchers to help…
FDA Grants Fast Track Designation to Healx NF1 Treatment
The Children’s Tumor Foundation’s support of the NF1 programs at Healx is accelerating progress! We…
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